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Noninvasive Eye Infection Treatment Shows Promise

(NewsUSA) - Those who suffer from eye infections that threaten a person’s vision have a new treatment option that is noninvasive and counters the problem of antibiotic resistance, based on recent research and clinical work.

Many eye infections are caused by multi-drug-resistant strains of bacteria and other pathogens, and standard treatments are limited, according to investigators at the Bascom Palmer Eye Institute of the University of Miami Miller School of Medicine in Florida.

VisiRose, a newly launched, privately-held clinical-stage biotechnology company affiliated with Provectus Biopharmaceuticals (OTCQB: PVCT), is collaborating with Bascom Palmer to commercialize a novel, noninvasive therapy for severe eye infections. The treatment, known as Rose Bengal Photodynamic Antimicrobial Therapy (RB-PDAT), combines a bioactive synthetic small molecule known as Rose Bengal Sodium with a light-based medical device to help manage eye infections caused by bacteria, fungi, and parasites.

“RB-PDAT represents a consequential solution for patients at risk of vision loss from severe infectious keratitis,” said Dominic Rodrigues, acting CEO of VisiRose. RB-PDAT treatment has been associated with rapid resolution of severe eye infections and improved vision outcomes for patients in clinical studies in the U.S., India, Brazil, and Mexico, according to the company.

“We believe Bascom Palmer’s innovative therapy combines infection-fighting capabilities with vision-preserving benefits, paving the way for a brighter future for those struggling with this challenging condition,” said Rodrigues, who also serves as vice chairman of the board of directors and president of Provectus.

Rose Bengal Sodium, the company’s flagship molecule, has demonstrated effectiveness against multi-drug-resistant Pseudomonas aeruginosa, among other strains, in a laboratory setting. At the Ocular Microbiology and Immunology Group conference in 2023, Bascom Palmer researchers reported that 76% of the first 100 patients treated with RB-PDAT at Bascom Palmer, who had severe eye infections unresponsive to standard treatment,achieved successful vision outcomes, with an average time to resolution of just over 6 months.

In a case series published last year in the medical journal JAMA Ophthalmology of nine adults who experienced severe eye infections caused by contaminated artificial tears, RB-PDAT was effective as an addition to antibiotics and helped improve vision outcomes in two patients who received this new therapy, according to Bascom Palmer researchers: a man in his 40s who came to the emergency department with severe pain and decreased vision in his left eye; and a woman in her 80s with worsening redness and visual loss in her right eye.

“This innovative therapy leverages the power of the versatile rose bengal small molecule to fight infection and offers new hope for preserving vision," Rodrigues said.

RB-PDAT has shown promising results in treating severe eye infections in more than 500 individuals worldwide where standard therapies have failed, according to the company press release. Notably, patients in India and Brazil were treated much earlier with RB-PDAT, receiving the oculat treatment as first-line therapy. “VisiRose has the potential to help fill a critical treatment gap in global eye care, particularly in regions and populations severely impacted by antimicrobial resistance with limited access to medical solutions,” Ed Pershing added, who is chairman of VisiRose’s board of directors and also serves as CEO and chairman of Provectus’s board.

Visit www.visirose.com to learn more.

 

Image caption: Juan Carlos Navia, M.D. at Bascom Palmer Eye Institute at the University of Miami Miller School of Medicine, delivering the VisiRose RB PDAT treatment in the clinic.

How Donating Blood Saves and Improves Lives in Your Community

(NewsUSA) - Every 2 seconds, someone in the United States needs blood, and a single donation can save lives. Shortages in the nation’s blood supply can happen any time. Donors, especially those who donate regularly, keep our blood supply stable.

Blood transfusions are essential for some patients undergoing surgery, or who’ve had serious injuries or are dealing with certain medical conditions. While everyone is impacted when there are shortages of blood and blood products, people living in communities with higher numbers of patients with rare blood types or diseases are disproportionately affected.      

Take those with sickle cell disease (SCD), a condition that affects more than 100,000 people in the U.S., the majority of who are Black or of African ancestry. Many people with SCD need blood transfusions throughout their lives but often find it difficult to get the type they need. That’s why Black or African American blood donors are so vital, as 1 in 3 are a match for people with SCD.

While it may seem outdated to think of blood in terms of race – the practice of segregating donated blood by race was discontinued shortly after World War II – scientific studies have found that, to reduce the risk of transfusion complications, some people do require blood or blood products from donors with the same racial or ethnic background.

Most people can give blood, but only 3% of Americans donate each year. If you are in good health, at least 16 or 17 years old (depending on the state), and weigh at least 110 pounds, consider donating. A diverse blood supply ensures that every American has equitable access to blood and blood products. You can make a difference in your community by donating blood and by encouraging others to do the same.

Learn more by visiting the National Heart, Lung, and Blood Institute’s Blood Diseases & Disorders Education Program.

Callout:

Diversity in Blood Types

Most blood types fall into one of the four major groups: A, B, AB, O. Blood donations from all types are always needed. However, some people have rare blood types. Some of the rare blood types for African Americans include U- and Fy (a-b-). For these patients, the U.S. blood supply must be more diverse. The best blood type match for patients with rare blood types often comes from donors of the same race or similar ethnicity.

Cómo la donación de sangre salva y mejora vidas en su comunidad

(NewsUSA) - Cada 2 segundos, alguna persona en los Estados Unidos necesita sangre.  Una sola donación puede salvar vidas. En cualquier momento se puede presentar escasez en el suministro de sangre del país.

Los donantes, especialmente aquellos que donan regularmente, mantienen estable nuestro suministro de sangre. Las transfusiones de sangre son fundamentales para algunos pacientes que se someten a cirugías, han sufrido lesiones graves o padecen ciertas afecciones médicas. Si bien todos nos vemos afectados cuando hay escasez de sangre y productos sanguíneos, las personas que viven en comunidades con una mayor cantidad de pacientes con enfermedades o tipos de sangre poco comunes se ven afectadas de una manera desproporcionada.

Tomemos como ejemplo a las personas con enfermedad de células falciformes (SCD, por su sigla en inglés), una afección que afecta a más de 100,000 personas en los Estados Unidos, la mayoría de las cuales son de raza negra o de ascendencia Africana. Muchas personas con enfermedad de células falciformes necesitan transfusiones de sangre a lo largo de sus vidas, pero a menudo les resulta difícil obtener el tipo que necesitan. Es por eso que los donantes de sangre afroestadounidenses son tan importantes, ya que uno de cada tres es compatible con las personas con enfermedad de células falciformes.

Si bien puede parecer anticuado pensar en la sangre en términos de raza (la práctica de segregar la sangre donada por raza se suspendió poco después de la Segunda Guerra Mundial), los estudios científicos han descubierto que, para reducir el riesgo de complicaciones en las transfusiones, algunas personas requieren sangre o productos sanguíneos de donantes con el mismo origen racial o étnico.

La mayoría de las personas puede donar sangre, pero sólo el 3% de los estadounidenses dona cada año. Si tiene buena salud, al menos 16 o 17 años (dependiendo del estado) y pesa mínimo 110 libras, considere donar. Un suministro de sangre diverso garantiza que todas las personas en los Estados Unidos tengan acceso equitativo a la sangre y a los productos sanguíneos.

Usted puede marcar la diferencia en su comunidad donando sangre y animando a otros a hacer lo mismo.

Obtenga más información visitando el sitio web del Programa de educación sobre enfermedades y trastornos de la sangre (en inglés), del Instituto Nacional del Corazón, los Pulmones y la Sangre.

Callout:

Diversidad de tipos de sangre La mayoría de los tipos de sangre pertenecen a uno de los cuatro grupos principales: A, B, AB y O. Siempre se necesitan donaciones de sangre de todos los tipos. Sin embargo, algunas personas tienen tipos de sangre poco comunes. Algunos de los tipos de sangre poco comunes entre los afroestadounidenses incluyen U- y Fy (a-b-). Para estos pacientes, el suministro de sangre en los Estados Unidos debe ser más diverso. La mejor compatibilidad del tipo de sangre para los pacientes con tipos de sangre poco comunes suele venir de donantes de la misma raza o grupo ético similar.

Radiation Therapists Play a Critical Role in Our Lives

(NewsUSA) - We take X-rays for granted, but they were unknown until German physicist Wilhelm Roentgen discovered them 130 years ago. Today, they’re associated with detecting problems with bones, teeth, and more, but one of their most important uses is curing common skin cancer.

More than 9,000 Americans each day are diagnosed with nonmelanoma skin cancer and, traditionally, they would be facing Mohs surgery to cure their disease. However, many cases are now successfully treated without surgery, thanks to research-backed, highly effective, noninvasive radiation therapies such as Image-Guided SRT, SRT, and Electronic Brachytherapy.

These nonsurgical treatments are available at select dermatology practices nationwide.

Highly skilled radiation therapists, in collaboration with dermatologists, radiation oncologists, and other specialists, utilize the latest advancements in X-ray and high-definition ultrasound technology to precisely target and destroy cancer cells—without scalpel, pain, or surgical scarring. Image-Guided SRT boasts a cure rate of 99% or higher, comparable to Mohs surgery, while Electronic Brachytherapy achieves a 98.8% cure rate within two years. With each of these treatments, radiation therapists play critical roles in advancing patient care.

Dr. Jacob Scott, Chairman of the Dermatology Association of Radiation Therapy (DART), a nationwide association of medical practitioners in the field of skin cancer, says, “Radiation therapists are key medical team members in the fight against common skin cancer. They often have the most face time with patients and with their professional training, radiation therapists are well positioned to participate in treatment planning and execution. They are instrumental in assessing patient needs and progress, and in assuring patient compliance with the plan.”

DART member Kelsay Craig holds a Bachelor of Science in Radiation Therapy and a Radiologic Technology Certificate from the University of Iowa and is a radiation therapist with DoctorsNow in West Des Moines, Iowa. Craig notes, "It is such a privilege and pleasure to work with patients knowing that with each treatment, they are on the path to being cancer-free. Radiation therapy has been a hidden gem in most dermatology communities, and I'm thrilled to be able to present Image-Guided SRT as a noninvasive treatment option for nonmelanoma skin cancers.”

The week of November 3 is National Radiologic Technology Week. If you know or have been treated by a radiation therapist, give them your thanks.

 

Photo Caption: Radiation Therapist Madeleine Appleseth uses high-tech system to cure common skin cancer painlessly

Don't Skip the Spuds: Idaho Potatoes Can Be Part of a Healthy Diabetes Meal

(NewsUSA) - Diabetes remains a growing health crisis in the United States, but many people living with diabetes are confused as to which foods should be part of their meal plan, according to the American Diabetes Association (ADA). For example, many people believe that those with diabetes or prediabetes should avoid potatoes, but in fact potatoes are highly nutritious and can be part of any healthy diet.  

“We want those living with diabetes and prediabetes to feel confident eating potatoes with their breakfast, lunch or dinner as long as serving size and preparation recommendations are followed,” according to Jamey Higham, president and CEO of the Idaho Potato Commission. “This partnership aims to enhance people’s understanding of nutrition, especially carbohydrates, help build healthy eating habits and debunk some myths about potatoes and diabetes.”

The ADA's Better Choices for Life program uses the ADA’s evidence-based guidelines and perspective to help consumers make informed choices about food purchases. Participating products display the Better Choices for Life mark on their packaging. In the coming months, this mark will appear on select 5-lb and 10-lb bags of fresh Idaho® potatoes.

The Diabetes Plate is one way the ADA educates people with diabetes about healthy eating.

This simple plan shows how to put together a meal that consists of vegetables, protein, and carbohydrates, which can include potatoes.

The Diabetes Plate:

Step 1: Fill half your nine-inch plate with non-starchy vegetables. Non-starchy vegetables are low in carbohydrates, so they have less impact on blood glucose.

Step 2: Fill one-quarter of your plate with lean protein, such as fish, chicken, lean beef, soy products, and cheese.

Step 3: Fill the last quarter of your plate with carbohydrate foods, such as starchy vegetables, beans and legumes, grains, fruit, and low-fat dairy products.

Step 4: Drink water or another zero-calorie beverage.

Step 5: Choose healthy fats in small amounts.

Potatoes are a starchy vegetable and can be a selection for the carbohydrate section of the Diabetes Plate. They are considered a superfood by many nutritionists because they contain potassium, vitamin C, and fiber. In addition, one 5.3-ounce potato has 110 calories, contains no sodium, and is naturally gluten-free and free of saturated fats.

Of course, preparation matters. Tips for healthy potato preparation include baking or boiling instead of frying, keeping the skins on for extra fiber, and using healthy oils when needed, such as avocado oil or extra virgin olive oil.

For more information on how those living with diabetes can enjoy Idaho potatoes, visit www.idahopotato.com.

PORTABLE HOME DEVICE FOR EARLY DETECTION OF BREAST CANCER

(NewsUSA) - The ScanEase OneSense device is a screening tool for diagnosing breast cancer. The device facilitates an examination that is accessible to patients of any age and body type, allowing for self-examination due to its user-friendly design in the privacy of their home. The results help assess the risk of new tissue formations in the breast. The higher the risk factor on the BI-RADS scale, the greater the likelihood of malignant tissue degeneration. In light of this, the OneSense scanning device is recommended for the primary diagnosis of breast tumors in outpatient settings and for at-home self-examinations. The scan results are visible through an app on your smartphone, which will advise whether you should consult with a physician.

Measurement method: 

The device measures the distribution of conductivity between the electrodes on the surface of the breast, which is influenced by the distribution of blood flow in the breast tissue.  The device utilizes the well-known principle of bioimpedance, measuring the difference in electrical conductivity between healthy and cancerous tissues, as tumor growth significantly increases blood flow. This allows the device to demonstrate a high specificity in breast cancer diagnostics. The results obtained from using the device will enable physicians to enhance the diagnostic quality of fibroepithelial and non-epithelial breast formations, as diagnostic errors occur in 20% to 60% of cases during routine patient examinations. The widespread use of ScanEase scanning technology will reduce the reliance on X-ray mammography and MRI examinations as routine methods for assessing breast health, thereby decreasing radiation exposure.

A unique software with a proprietary AI-based algorithm has been developed, enabling users to determine the risk factor for the presence of neoplasms in breast tissue immediately after screening, with an accuracy of up to 85%. The bioimpedance method identifies areas of increased electrical conductivity in a woman's mammary gland, that are formed due to increased blood flow, which is characteristic of tumor development.

The interpretation of the obtained data is performed by an AI-based system using the international BI-RADS scale, which indicates a complex 'risk factor' parameter on a specialized point scale. This approach standardizes and digitizes the data description using original algorithms, allowing for an assessment of the patient's risk according to the BI-RADS scale. The method makes it possible to reliably divide patients into 3 groups of threats based on the magnitude of the risk factor: low, medium and high risk.

The user of the scanning device can immediately view the results through an app on their smartphone. If a medium or high-risk result is indicated, the person should promptly contact their physician for further diagnosis.

In early 2025, the device will enter FDA clinical trials on a fast-track basis for a non-invasive medical trial. Upon final FDA approval, the device will be available for purchase online, with a projected cost of $350. The device can be shared among friends and family, reducing the cost per person using it. View the Company’s website at www.scanease.co or send an email to [email protected] to request more detailed information.

Signs & Symptoms of Sarcopenia: What You and Your Caregiver Need to Know

(NewsUSA) - As we age, maintaining physical fitness and the ability to move our body easily becomes more important to our overall well-being. However, an often-overlooked condition known as sarcopenia can gradually lower individuals’ muscle mass and strength without obvious warning.

Sarcopenia is the loss of muscle and strength that can happen when someone gets older. This can lead to weakness, decreased ability to move, and a higher risk of falls and broken bones. Although aging is a risk factor, others include poor nutrition and lack of physical activity. Some chronic illnesses and hormonal changes, such as those that occur with menopause, may also lead to higher risk of sarcopenia.

Recognizing the signs and symptoms of sarcopenia is key for early intervention to maintain quality of life and independence. Unexplained muscle weakness, lower endurance, or having a hard time with everyday activities might be signs that it’s time to take action.

Being aware of sarcopenia is important for individuals who care for family members or friends, as they are often the first to notice changes in strength, ability to move, and overall well-being. Caregivers can help get timely medical consultations and interventions.

Some of the common signs and symptoms of sarcopenia include:

  • Muscle Weakness: An early and often noticeable symptom of sarcopenia is decreased muscle strength. Tasks that were once easy, such as lifting things, climbing stairs, or even standing up from a chair, may become challenging.
  • Loss of Muscle Mass: An easy-to-see decrease in muscle size, particularly in the arms and legs, is a common sign of sarcopenia.
  • Reduced Energy and Endurance: Adults with sarcopenia may report a lack of energy and decreased ability to do physical activity. Activities that involve sustained physical effort, like grocery shopping or gardening, may lead to faster exhaustion.
  • Difficulty with Balance and Coordination: As muscle strength and function decline, balance and coordination may also be affected. The risk of falls increases and can lead to broken bones, which may decrease mobility further and impact overall health.
  • Slower Walking Speed: An easy-to-see reduction in walking speed and a shuffling gait may be signs of sarcopenia.

“If a person notices any of the signs and symptoms of sarcopenia, they or their caregiver should seek professional medical help,” advises Dr. Dorothy Fink, Deputy Assistant Secretary for Women’s Health. “A health care provider can perform a thorough evaluation, including physical examinations, muscle strength tests, and imaging studies, to diagnose sarcopenia. An accurate diagnosis is the first step towards effectively addressing sarcopenia.”

Once diagnosed, you and your health care provider can create a treatment plan tailored to your specific needs. This may include strength training activities and nutritional advice to help keep and rebuild muscle and strength.

For more information on the signs and symptoms and ways to help address sarcopenia, visit the Stronger than Sarcopenia campaign webpage, provided by the U.S. Department of Health and Human Services, Office on Women's Health: www.womenshealth.gov/sarcopenia.

Los expertos animan a los cuidadores a prepararse para la temporada de enfermedades respiratorias

(NewsUSA) - Si eres uno de los 1 de cada 5 estadounidenses que cuida de un cónyuge, padre, hijo, adulto mayor o alguien con condiciones de salud crónicas, discapacidades o necesidades especiales, es posible que hayas asumido este rol con poca o ninguna capacitación o asistencia externa.

Además de ayudar a otros con las actividades diarias y tareas médicas, los cuidadores a menudo actúan como defensores, asegurándose de que aquellos a quienes cuidan reciban la atención preventiva y los tratamientos que necesitan, incluyendo la protección contra amenazas potencialmente graves de enfermedades respiratorias como el COVID-19 y la gripe.

Desarrollar un plan de cuidado que incluya listas de verificación y recordatorios puede ayudar a los cuidadores a organizarse y prepararse para gestionar el cuidado diario y de la salud de otra persona. Los Defensores de la Educación, la Equidad y el Progreso de la Vacunación (CVEEP)  y la National Alliance for Caregiving (NAC) han emitido una nueva guía para ayudar a los cuidadores a construir un plan de cuidado antes de la temporada de enfermedades respiratorias de este año, que puede ser un momento estresante para las personas con condiciones médicas crónicas o sistemas inmunitarios comprometidos.

Los expertos de CVEEP y NAC ofrecen los siguientes consejos para los cuidadores:

  • Mantén una lista de problemas médicos y medicamentos Asegúrate de llevar un registro de cualquier problema médico y cualquier alergia, incluidas las alergias a medicamentos, que la persona bajo tu cuidado pueda tener. También es importante mantener una lista de los medicamentos que toman, incluyendo vitaminas, suplementos o productos herbales.
  • Mantente al día con las vacunas Asegúrate de que tú y aquellos bajo tu cuidado estén al día con las vacunas de rutina, incluidas las vacunas actualizadas contra el COVID-19 y la gripe que están disponibles en otoño. Consulta con un proveedor de atención médica sobre vacunas adicionales que puedan ser necesarias para protegerte contra otras enfermedades respiratorias infecciosas como el VSR, la enfermedad neumocócica o la tos ferina.
  • Observa los síntomas Los síntomas de enfermedades respiratorias pueden incluir tos, fiebre, dificultad para respirar y dolor de garganta. Busca consejo médico temprano si estos síntomas aparecen, especialmente en adultos mayores, niños pequeños y cualquier persona con mayor riesgo de enfermedad grave debido a condiciones médicas crónicas.
  • Accede al tratamiento Los fármacos antivirales pueden ayudar a tratar el COVID-19 y la gripe, aliviando los síntomas y reduciendo el riesgo de hospitalización, especialmente para personas con mayor riesgo de enfermedad grave. Son tratamientos de venta con receta y que deben administrarse al inicio de la enfermedad, por lo que es importante estar preparado y actuar con rapidez cuando aparecen los primeros síntomas. Habla con un proveedor de atención médica para determinar si un tratamiento antiviral es una opción para las personas a las que cuidas.
  • Mantente informado Sigue a los Centros para el Control y la Prevención de Enfermedades (CDC, por sus siglas en inglés) para obtener la información más reciente sobre la temporada de enfermedades respiratorias y habla con tu proveedor de atención médica para obtener respuestas a cualquier pregunta que puedas tener.

Se anima a los cuidadores a visitar el sitio web de CVEEP (cveep.org/es/) y el sitio web de NAC (caregiving.org) para obtener información y recursos adicionales.

 

 

Experts Encourage Caregivers to Prepare for Respiratory Illness Season

(NewsUSA) - If you are among the 1 in 5 Americans who serves as a caregiver to a spouse, parent, child, older adult, or someone with chronic health conditions, disabilities, or special needs, you may have taken on the role with little or no training or outside assistance.

In addition to assisting others with the activities of daily living and medical tasks, caregivers are often advocates helping ensure that those they care for receive the preventive care and treatments they need – including protection from potentially serious threats from respiratory illnesses like COVID-19 and flu.

Developing a care plan that includes checklists and reminders can help caregivers organize and prepare themselves to help manage someone else’s daily care and health. Champions for Vaccine Education, Equity and Progress (CVEEP) and the National Alliance for Caregiving (NAC) have issued a new guide to help caregivers build a care plan ahead of this year’s respiratory illness season, which can be a stressful time for people with chronic medical conditions or compromised immune systems. 

CVEEP and NAC experts offer the following tips for caregivers:

  • Keep a list of medical issues and medications. Be sure to keep a record of any medical issues and any allergies – including drug allergies – the person in your care may have. It’s also important to maintain a list of the medications they take, including vitamins, supplements, or herbal products.
  • Stay current on vaccinations. Ensure that you and those in your care stay up to date on routine vaccinations, including the updated COVID-19 and flu vaccines available in the fall. Consult with a healthcare provider about additional vaccines that may be necessary to protect against other infectious respiratory illnesses like RSV, pneumococcal disease, or whooping cough.
  • Watch for symptoms. Symptoms of respiratory illness can include cough, fever, shortness of breath, and sore throat. Seek medical advice early if these symptoms appear, especially in older adults, young children, and anyone at increased risk for severe illness because of chronic medical conditions.
  • Access treatment. Antiviral drugs can help treat COVID-19 and flu, lessening symptoms and lowering the risk of hospitalization, especially for people at higher risk for serious illness. They are prescription-only treatments that must be given early in illness, so it’s important to be prepared and act quickly when the first symptoms appear. Talk to a healthcare provider to determine if an antiviral treatment is an option for those you are caring for.
  • Stay informed. Follow the Centers for Disease Control and Prevention (CDC) for the latest information on respiratory illness season and talk to your health care provider for answers to any questions you may have.

Caregivers are encouraged to visit the CVEEP website (cveep.org) and NAC website (caregiving.org) for additional information and resources.

How Psoriasis Stigma Impacts Health

(National Psoriasis Foundation) - You’ve seen the commercials. Psoriasis treatments are everywhere. So it would follow that people with psoriasis can also be found everywhere, right? In theory, yes. About 3 percent of all people will develop psoriasis – a chronic, inflammatory disease that can have severe consequences and comes with an unwelcome increased risk of several related diseases. But what the numbers don’t show is the impact that shame and stigma can have and the unintended consequences of those feelings.

More than 125 million people worldwide live with psoriasis. If you attend a National Football League game this fall or winter, you’ll be in a stadium with more than 2,000 people who have developed psoriasis. Or maybe music is more your thing. If you saw Taylor Swift at the average Eras Tour venue in the U.S., about 2,300 of your fellow Swifties in attendance were living with this lifelong disease.

When you frame it that way and think about all the psoriasis drug commercials filling up your screen, it may sound like the disease is well understood – even normalized. But the results of the new Psoriasis Health Indicator Report bring a dark reality to light: Misunderstandings about psoriasis and the people who live with this disease are rampant. Worse yet, stigma about the disease is a contributing factor to people living in isolation or not seeking care.

Misunderstandings Have Consequences

According to the report, more than half of the people in the U.S. who do not live with psoriasis say they would be uncomfortable dating someone with the disease, and more than 40 percent say they wouldn’t even be comfortable shaking hands with someone living with psoriasis.

How would you feel if 1 in 3 people were uncomfortable having you in their home? Yes, another sad reality laid out in the report. What about if 1 in 4 people were closed off to being your friend because of a disease you live with? Ouch.

With so much stigma – such a drastic level of misunderstanding and downright discrimination – would you be open about your life with psoriasis? Would you be willing to pursue treatment?

Psoriasis is not contagious, but it is a public health concern. People with this disease are at an elevated risk for heart disease, type 2 diabetes, psoriatic arthritis, and depression. All of those risks – as well as the threat of developing more severe psoriasis – increase when the disease is left untreated. Booking an appointment with a healthcare provider is hard enough. But carrying around all the stigma-driven shame that comes with having this visible disease makes the pursuit of proper disease management and treatment from a qualified specialist much more unlikely.

The Truth Heals

Tragically, all this stigma is a part of daily life for the 8 million people in the U.S. who live with psoriasis, but people are speaking out, and each time they do, the world gains a little more understanding. Take Takieyah Mathis of Fayetteville, North Carolina for example. She recently opened up in the National Psoriasis Foundation’s In Focus: #ThisIsPsoriasis video series about the challenges she faces each day with this disease and the lessons she’s learned. “Psoriasis put me in a big self-esteem hole,” she shares. “I started to worry about my hair, my skin.” Takieyah was constantly worried about who was looking at her because of the lesions on her skin.

Psoriasis Health

Takieyah took some time to work up the resolve to face the stigma and the stares from onlookers, but as a model, mother, and community builder – psoriasis was not going to hold her back. With the support of her husband and community, she took back control of her self-belief. “You are not your diagnosis. Try to find ways that make you feel beautiful or feel good,” she says. “Finding that peace within yourself is really what’s going to carry you through every day.”

We all know someone with psoriasis. We owe it to them to promote encouragement and support in the face of judgement and misunderstanding. August is Psoriasis Action Month, and thanks to the increased attention, and stories like Takieyah’s who are combatting stigma head-on with the truth and their lived experience, the rest of the world is gaining a little added perspective and compassion.

To learn more about Takieyah or to hear from others who live with psoriasis, visit psoriasis.org/in-focus.

 

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